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Monday, September 19 • 11:00am - 4:00pm
( REF 19050 - On line) The impact of regulations particularly data protection regulations on data for health research

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The session will consider how regulations for data protection influence cooperation in medical science and health research and as such affect the achievement of the SDGs.
Regulations in general are vital for diagnostics to ensure good quality standards in health care while data protection regulations aim at giving control to individuals over their personal data while ensuring the free flow of this personal data between member states in the case of Europe by attempting to unify regulations and ultimately to simplify the regulatory environment for international business.
Advances in medical healthcare, to which data subjects who provide their data can avail, can only occur through advances in scientific research and the amalgamation of personal health data. The ability to access masses of health data through global collaboration is paramount to create new diagnostic tools. These tools can help address global health care shorts falls and identify more appropriate treatment for patients.
Europe’s General Data Protection Regulation (GDPR) in particular, as with any substantive regulatory reform, has had unintended consequences, most notably regarding joint research enterprises, even within the direct scope of Europe, a relatively homogenous region, due to the significant differences in how people approach to privacy. This is compounded by the extraterritorial scope of this regulation and beyond the European GDPR that there are other regions and countries with other regulations, so it is vital to unify these to the SDG on health.
There is a societal benefit in reusing data for appropriate purposes and subject to appropriate safeguard yet fragmentation continues to exist that prevents research collaboration as there is no overarching jurisdiction to govern international collaborations.
The session will consider these issues and speakers will share their own expertise to develop potential mechanisms and recommendations for collaboration

avatar for Rita Lawlor

Rita Lawlor

Biobank Director, ARC-Net, University of Verona
Rita T. Lawlor is associate professor in the Department of Diagnostics and Public Health and a fellow of Information Privacy from IAPP (International Association of Privacy Professionals). Rita is originally a Computer Science graduate with a doctorate in translational biomedical... Read More →

avatar for Christos Arvanitidis

Christos Arvanitidis

CEO, LifeWatch ERIC

David Peloquin

Ropes and Gray
avatar for Kurt Zatloukal

Kurt Zatloukal

Diagnostic and Research Center for Molecular Biomedicine, Director of BBMRI.at, Medical University of Graz
Kurt Zatloukal, M.D. is a professor of pathology at the Medical University of Graz, Austria and is head of the Diagnostic and Research Center for Molecular Biomedicine. His research focuses on the molecular pathology of diseases as well as biobanking and related technologies. He coordinated... Read More →
avatar for Vincenzo Lorusso

Vincenzo Lorusso

Policy Officer, DG Research, European Commission
Vincenzo Lorusso works as a Policy Officer at the European Commission, DG Research and Innovation (DG RTD), where he is in charge of Research and Innovation cooperation with Africa and, bilaterally, with ASEAN countries. Before joining the Commission, Vincenzo worked for eight years... Read More →
avatar for Sampson Kofi Adotey

Sampson Kofi Adotey

Senior Communications and Outreach Manager, African Institute for Mathematical Sciences (AIMS)
Sampson Kofi Adotey is enabling science & technology for society by hacking education with inclusive innovation. He is the Senior Outreach Manager at the African Institute of Mathematical Sciences – Global Network. The World Economic Forum recently appointed him as the Global Shapers... Read More →
avatar for Prof. Lucio Criado

Prof. Lucio Criado

Past-President, Sociedad Argentina de Medicina
Prof. Dr. Lucio Criado. Past-presidente Argentine Society of Medicine. Prof. Diabetes and Metabolism Argentine Catholic University. Prof. Pharmacy and Biochemistry University of Buenos Aires. Medical Director of the Social Work of Pharmacists and Biochemists of the Argentine Republic... Read More →
avatar for Motlalepula Matsabisa

Motlalepula Matsabisa

Professor and Pharmacology IKS Research Director, Faculty Health Sciences, University of the Free State, Bloemfontein, South Africa
Professor of Pharmacology at University of the Free State in Bloemfontein South Africa.  I have a special interest in the pharmacology and science of medicinal plants. I have interest in drug discovery, drug development, clinical trials, pharmaceutical development.  I am chairperson... Read More →
avatar for Arman Rahman

Arman Rahman

Assistant Professor, UCD
Dr. Arman RahmanA Bangladeshi Irish cancer researcher, Dr. Rahman works as an assistant professor at University College Dublin (UCD) School of Medicine and is responsible for Precision Oncology Ireland's Tissue Imaging Platform. After finishing his Ph.D. in Immunology from Umea University... Read More →
avatar for Solomon Benor

Solomon Benor

CEO, Research and Community Engagement Affairs
Dr Solomon Benor is CEO of Research and Community Engagement Affairs at the Ethiopian Ministry of Education. He is also an Associate Professor of Plant Biotechnology at Addis Ababa Science and Technology University (AASTU), and an Adjunct Associate Professor at Addis Ababa University... Read More →
avatar for Yolanda Moyo

Yolanda Moyo

Head of Government Affairs, Illumina
Yolanda Moyo RN, MSc, is the Head of Government Affairs Africa at Illumina, based in Johannesburg South Africa. Her role is to manage and maintain government and stakeholder relations to enable the adoption of genomics technology in Africa. Previous to joining Illumina, Yolanda worked... Read More →
avatar for Bamidele Ademola Olateju

Bamidele Ademola Olateju

Commissioner,  Ondo State Government
BAMIDELE ADEMOLA-OLATEJU is a Creative Writer, Social Media Maven, Author, Digital Strategist and Political Analyst with Versatile Background in Technical Communications. She is the Convener - Circle of Hands, a youth development and advocacy organization and the New Initiative For... Read More →
avatar for Solomon Assefa

Solomon Assefa

Dr. Solomon Assefa is a Vice President at IBM Research. He leads the global effort focused on developing core technologies for climate change mitigation and adaptation, healthcare and life sciences, computing and nanotechnology. Under his leadership, hundreds of researchers from IBM’s... Read More →

avatar for declan kirrane

declan kirrane

Chairman, Science Summit UNGA78
Declan Kirrane is the Founder and Managing Director of ISC Intelligence in Science, the chairman and managing director of the science Summit at the United Nations General assembly, and co-founder of Medicines for Future (MAF). He has over 25 years of experience as a global senior... Read More →
avatar for Ramin Sedehi

Ramin Sedehi

Founder, Impact Human Learning
Ramin is passionate about closing the gaps between science, education, society, and policymakers to understand the depth and breadth of humanity's challenges. To impact the health of communities, improve educational markers, and, most importantly, uphold democratic values and build... Read More →

Monday September 19, 2022 11:00am - 4:00pm EDT